In our research, these workers reported discrimination and often exploitation from patient consumers. Thus, families are by no means passive and must be considered active partners in care. For example, patients seek ways to use the technologies but also to be free of them (Fex, Ek, and Soderhamn, 2009). Similar effects of culture may be evident in the willingness of families to accept telehealth technology, express their degree of burden or need for help, or seek hospice care at the end of life. Medical Care Research Review, 66, 119-146. Social Science and Medicine, 66, 1,603-1,613. 19-36). One implication of the social-ecological approach to home health care, then, is the need to consider these factors in adoption decisions, which implies an expanded approach to human factors. Such concordance may be more important for more generalized trust in communication with physicians or satisfaction with health services overall (Sohler et al., 2007). Journal of the American Geriatrics Society, 49, 948-953. The figure shows the four levels mentioned earlier: (1) individual, (2) family social relations, (3) community-neighborhood effects, and (4) the policy domain. Chapter 10 presents an extensive discussion of the physical environment and its effects on home care. Beyond the community sphere is a larger circle encompassing public policies and laws that regulate provision of home care. Since the combination of family and paid formal care is increasingly common (and modal in service-rich urban areas, such as New York City), this gap is doubly surprising. A striking example is a culture-bound syndrome, susto. (2008). Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text. These ethnically diverse caregivers were much more concerned with access to appropriate care, avoiding unmet need, and navigating challenging bureaucracies. Although it involves fatigue, anxiety, and withdrawal from social roles, it is not simply a psychological disorder. Chen, J.Y., Diamant, A., Pourat, N., and Kagawa-Singer, M. (2005). Visually, it can be imagined as a series of concentric circles, with the individual in the smallest circle at the center. Thus, the flow of information is more efficient in high-income communities and allows greater efficiencies in service delivery. They did describe cultural differences between family and agency staff concerns, but these were less salient in their experience of receiving home care. Homes are located in neighborhoods, where home health care providers may not feel welcome or safe because of crime in a low-income neighborhood and discrimination or suspicion in a higher income one. The hospital bed was centrally placed in the living room. Psychosomatic Medicine, 61, 868-875. For example, in the New York City study of home attendants providing personal assistance care, many reported thefts, pressure if not overt threats from family members, and great concern for personal safety (Albert, 2002). Another question is whether minority and nonminority families receive the same services at home. About three-quarters of the families were providing personal care, and most were delivering nursing services, including dispensing medications, monitoring symptoms, checking blood pressure, and other tasks performed by nurses on their visits. Liebel, D.V., Friedman, B., Watson, N.M., and Powers, B.A. Women in the nineteenth century constricted their waists and compressed their breasts with rigid corsets. Health and Social Work, 29, 219-245. (1955). Most studies cover only a few of the levels or paths linking levels. The demonstration focused mainly on personal assistance services, but it would be valuable to determine if families in the intervention arm also used medical technologies more effectively or were better able to adapt homes for the use of such technologies. Gonzalez, H.M., Haan, M.N., and Hinton, L. (2001). This inquiry suggests a number of hypotheses for future research, some of which were mentioned earlier, all drawing on the social-ecological framework developed for home care. On October 1 and 2, 2009, a group of human factors and other experts met to consider a diverse range of behavioral and human factors issues associated with the increasing migration of medical devices, technologies, and care practices into the home. If home care providers must become family to have reasonable access to patients and support from families, then establishing appropriate professional boundaries may also be difficult. (2009). One systematic review did not find concordance in race or ethnicity a significant predictor of receipt of services or satisfaction with care (Meghani et al., 2009). All rights reserved. Social Forces, 87, 387-414. The agency had to develop guidelines for cases in which clients and home care workers do not speak the same language or share a common culture. The process of cultural competence in the delivery of healthcare services: A model of care. As of 2009, the Cash and Counseling program had been renamed and extended to at least 12 additional states (see http://www.bc.edu/schools/gssw/nrcpds/meta-elements/pdf/NewCenterReleaseDraf.pdf). Susto: A folk illness. Archives of Physical Medicine and Rehabilitation, 87, 1,566-1,575. In J.F. In other cultures, the stress may be on the more positive elements, as among the Samia of Kenya, who boast of aging as a time to sit by the fire and be fed (Albert and Cattell, 1994). New York: Springer. Spell. Provider agencies in higher income communities in this study were more closely linked than agencies in lower income communities. Caplan, 2004). Each of these determinants has a cultural, social, or community component. Consider the case of long-term oxygen therapy. Nor are they always alerted in advance of the date of case closings. McElroy, A., and Townsend, P. (1996). African American caregivers who endorsed family-based justifications for caregiving showed better health outcomes and reported less caregiving stress than caregivers not endorsing these justifications (Dilworth-Anderson, Goodwin, and Williams, 2004). A reasonable hypothesis would involve less efficient decision making (and perhaps poorer outcomes for patients) by caregivers who do not express the consensus view. They link families in search of such information and thus promote more effective use of resources (and also indirectly promote greater health differentials between high- and low-income neighborhoods). Measuring cultural consonance: Examples with special relevance to measurement theory in anthropology. One study of home care service use by Mexican Americans showed that familism was related to confidence in the services; elders and caregivers who endorsed familism more highly were less convinced of the value of home care and were accordingly less likely to use such services (Crist et al., 2009). With each additional decade of life, adults will see not only declines in strength and walking speed and slowing in reaction time but also declines in addictive behaviors and crime, reduction in severe psychiatric disorders, and increased contact with close family (Albert and Freedman, 2010). In J.F. One such flow diagram for decisions to adapt homes for advanced medical technology is shown in Figure 11-1. (2009). Well-being, appraisal, and coping in African-American and Caucasian dementia caregivers: Findings from the REACH study. It may be possible to harness social and community factors to promote self-efficacy. Weak neighborhoods mean weak social ties, with fewer neighbors to check in on elders, absence of common safe areas (such as stores or parks) that allow people to seek refuge or make contact with others, and less support for home care personnel seeking to deliver services to shut-in elders. Violence against home care workers is not well documented. One would expect a host of better outcomes to follow from culturally sensitive home care: for example, greater adherence to medication, quicker return to function, greater consumer satisfaction, and lower rates of rehospitalization. Social relationships differ across cultures in the relative priority assigned to individual and family interests. (1991). Chicago: University of Chicago Press. Those who, for religious reasons, abstain from tea, coffee, alcohol, and tobacco have smaller risks of getting cancer of the gastrointestinal or respiratory tract than others of similar social, economic, and residential background. Encyclopedia of Public Health. Health Psychology, 26, 564-576. The epidemic of violence against healthcare workers. One of the main traits cultural psychologists observe when they analyze cultures are the morals that a certain culture emphasizes. Trust in the health care system and the use of preventive health services by older black and white adults. Finally, patient groups differ in the trust they place in medical providers and medical care. Aging and Mental Health, 8, 330-345. Social support, home health service use, and outcomes among four racial-ethnic groups. Sign up for email notifications and we'll let you know about new publications in your areas of interest when they're released. When educators think about diversity in the classroom, culture may be one of the characteristics that crosses their mind. These clearly affect access to home care and perhaps also outcomes of home care. The social-ecological approach suggests that improvement in home care outcomes will depend on adequate recognition of the role of culture, family and social relationships, and communities in the delivery of care. Kim, J.H., Knight, B.G., and Longmire, C.V. (2007). Kiss to say hello. by 2050 minority groups will assume membership in th emerging majority immigrant population is growing at a faster rate than that of the native born. (2002). (2009). Crist, J.D., Kim, S.-S., Pasvogel, A., and Velazquez, J.H. Klinenberg, E. (2004). program suggests that families themselves can train the workforce in such sensitivity, with benefits to both consumer and provider. Melville Jean Herskovits (1895–1963) was an American anthropologist. Culture plays a role in forming a child's identity, conversational style and memory. More than a century of ethnographic research profoundly supports the theory of cultural relativity, the theory that…, Culture areas are geographical territories in which characteristic culture patterns are recognizable through repeated associations of specific traits…, Herskovits, Melville Jean In modern industrial societies an adolescent culture has developed. (1990). Itâs a way of life, and ⦠As one home attendant stated, “You go into their homes. Thus, the home environment is nested in social and cultural layers that may lead to different home care outcomes, even with similar patients and common home environments (Barris et al., 1985). ." The Cash and Counseling. Click here to buy this book in print or download it as a free PDF, if available. In the United States, and in other nations with large immigrant populations, there is a wide range of cultural diversity, religious beliefs, customs, and values, reflecting the scattered origins of the people. The absence of differences in home care service use by cultural group may or may not mean equal likelihood of use of medical technologies in the home. Share a link to this book page on your preferred social network or via email. (2005). Another cultural practice with severe health consequences is female genital mutilation, which is performed on young girls in many African and Middle Eastern nations. Unsafe neighborhoods, household disruptions from alcohol or drug use, and inadequate room for equipment or environmental modifications may make home care a poor or risky option” (see http://www.healthinaging.org/agingintheknow). Cowgill and L.D. The latter may be particularly important for the use of new home care technologies. Culture and society are essential in shaping a personâs diet. Match. Gerontologist, 43, 503-513. African Americans are more likely than whites to endorse the primacy of family care (Dilworth-Anderson et al., 2005) and accordingly are less likely to make use of formal long-term care, including respite, home care, adult day programs, skilled nursing facilities, and hospice. Research suggests different kinds of trust: in one’s personal physician, in the competence of a physician’s care, and in formal and informal sources of health information. Some girls and women strive to achieve a very low body weight, a modern, culturally shaped notion of beauty that has supplanted the former "ideal"—the plump female form depicted in the paintings of Rubens and Renoir. (2009). The role of familism in stress and coping processes among African American and white dementia caregivers: Effects on mental and physical health. ...or use these buttons to go back to the previous chapter or skip to the next one. Cultures with a strong bias toward home care and away from institutional care will be more receptive to the adaptation of homes. Social determinants of health are the conditions that we live, learn, work, and play in. A key gap in research and policy, then, is to understand how families and formal home care providers interact: what the points of friction are and how coordination between the two can be enhanced. Medicaid home care services and survival in New York City. The challenge of crossing cultural boundaries obviously becomes more difficult when home care personnel and patients do not speak the same language. Peng, T., Navaie-Waliser, M., and Feldman, P.H. Female genital mutilation was banned in the United States in 1995, and is also outlawed in Britain, France, Canada, Sweden, Switzerland, and some African countries. Knox, C., and Thobaben, M. (1997). Shen, C., Smyer, M., Mahoney, K.J., Simon-Rusinowitz, L., Shinogle, J., Norstrand, J., Mahoney, E., Schauer, C., and del Vecchio, P. (2008). The value of this approach is its ability to show how actions in one domain depend on, or may influence, actions in another domain; thus, changes in the individual domain may depend on changes in family or social relationships. Social influence comprises the ways in which individuals change their behavior to meet the demands of a social environment. The rapid growth of home health care has raised many unsolved issues and will have consequences that are far too broad for any one group to analyze in their entirety. Do you want to take a quick tour of the OpenBook's features? If informal sources of health information are more important for some cultural groups for the adoption of home health care technologies, then it will be important to work through these informal networks for changing social norms regarding acceptability. Because each style has its own formatting nuances that evolve over time and not all information is available for every reference entry or article, Encyclopedia.com cannot guarantee each citation it generates. Journal of Telemedicine and Telecare, 14, 443-447. Occupation as interaction with the environment. Here higher levels in the social-ecological framework may become more relevant (see Figure 11-1). In judging something as easy or difficult, our attitude and our motivation levels ⦠Yet home care paraprofessionals are expected to work in patient homes, to serve to some extent as surrogate family, and to help disabled or critically ill patients function on their own terms. A smaller proportion was managing equipment and providing physical/occupational therapy, speech therapy, and cognitive remediation. The idea of culture is vital to understanding the implications for translation and, despite the differences of opinion as to whether language is a part of culture or not, the two are connected. Thus, social networks can have properties that are protective of health, and their absence or weakness may make it quite difficult to deliver services to homes. For example, ethnic and racial minorities are less likely to take advantage of preventive health services, such as vaccinations and cancer screening, even when these are available (Chen et al., 2005). Urban neighborhood context, educational attainment, and cognitive function among older adults. Cultural Factors. (2006). This approach to culture does not involve differences among ethnicities or people who speak different languages but rather the operation of culture in. Oxford, UK: Butterworth-Heineman. Mortality and Morbidity Weekly Review, 57(31), 852-854. The below list consists of countries that are regarded as the flag bearers of cultural influence across the globe and have been often tagged as key players in this area. Perceived ease of use depends on social support from families, whether families will help maintain technologies, and how receptive they are to instruction from home health care providers. (2002). Results from a number of the programs suggest that greater inclusion of families in care planning and management results in positive outcomes, including satisfaction with care arrangements, reliability of paid caregivers, meeting patient needs, caregiver stress, and patient quality of life. Yet home care agencies do not, for the most part, treat them this way. cultural pluralism, Benedict, Ruth Consumer-directed care for beneficiaries with mental illness: Lessons from New Jersey’s Cash and Counseling program. Care coordination assisted by technology for multiethnic caregivers of persons with dementia: A pilot clinical demonstration project on caregiver burden and depression. Public health and aging: An introduction to maximizing function and well-being. Positive findings would be a strong argument for the relevance of social capital in individual health outcomes and would support other studies that have shown such neighborhood effects as, for example, the recurrence of coronary syndromes and risk of rehospitalization (Scheffler et al., 2008). Donald, I.P. Gerontologist, 13(6), 726-734. The risk of fire is high if users smoke because oxygen saturates clothing, fabric, and hair and serves as a fire accelerant. Discrimination in experiences with medical providers (or more generally) may affect receptivity to home care. I conclude with a series of recommendations derived from the social-ecological approach, as well as a series of hypotheses suggested by this inquiry. Ethnicity and time to institutionalization of dementia patients: A comparison of Latina and Caucasian female family caregivers. However, flowchart models based on such relationships can be useful for specifying hypothesized cross-level influences. Culture, Health and Illness. Family members with experience of home care would be likely to generate a long list of answers to the first elicitation, which might include hospice services, infusion technologies, a hospital bed, a commode, smart home telemonitoring, more reliable telephone or utility service, modifications to the home to increase access, a place to store medical supplies, a separate place for visitors or other family members, and perhaps others. For example, Bible reading and prayer were a normal part of schooling. Not a MyNAP member yet? Preventive Medicine, 39, 649-656. Culture, illness, and care: Clinical lessons from anthropologic and cross-cultural research. Journal of Practical Nursing, 48, 16-21. Encyclopedia.com. Likewise, a consistent relationship with service providers at the level of the neighborhood may reinforce proadaptation resources at the level of the family, such as willingness to include home health care staff as “family,” and a reasonable division of labor with home care providers. Culturally determined characteristics include: the language spoken at home; religious observances; customs (including marriage customs that often accompany religious and other beliefs); acceptable gender roles and occupations; dietary practices; intellectual, artistic, and leisure-time pursuits; and other aspects of behavior. Do you enjoy reading reports from the Academies online for free? Also, the challenges of agency handoffs to families, as when home health care coverage ends (and cases are closed), remain mostly unexplored. 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